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Why politicians should pay more attention to the polls (reprise)
Welcome to the 231st edition of The Week in Polls (TWIP), a polling newsletter that always welcomes new readers. So please don’t keep TWIP a secret; share it with your friends and colleagues: Share The Week in Polls With all the stories swirling around Reform, JL Partners and political polling, I am finally tearing myself away from talking about the regulation of polling this week - and instead re-running a previous piece reminding us why the solution to problems with polls isn’t simply to ban or ignore them. Rather, we need them to play a vital role in making our politics - and politicians - better. This is followed by summaries of the latest national voting intention polls, seat projections from MRPs and the most recent party leader ratings. Subscribers who pay for the full edition can also read ten insights from the latest polls and analyses, including: A trio of organisations and a pair of professors have been casting their eyes over the Liberal Democrats ahead of the party’s autumn conference; What impact did the summer heatwave have on views on climate change? and Which wins out between chocolate and cheese? If you are not yet a paid subscriber, you can read all ten by starting a free trial now: Get FREE 7-day trial For more polling news as it comes in ahead of next week’s edition, you can also follow The Week in Polls on Bluesky. Picking up on my doubt last week about whether or not 35% of British train travellers have tried to order a takeaway for delivery to a railway station or carriage, thank you to reader Iain, who has been in touch to say he has done just that… in India. Another quick pair of updates, this time on the controversies around Reform and polling. Politico has a further scoop - “Farage aide caught in donor sting attended Egypt retreat with JL Partners” - and Ian Dunt has written about the problems with polling too: “Seeing the response of many polling experts in the last few weeks suggests that they are nervous about what is happening and keen to mitigate against it. Seeing the response of journalists, which has been basically non-existent, suggests the precise opposite.” My usual reminder as well: please do hit reply if you’ve spotted a poll, focus group or new piece of poll-based research that you think should be in contention for coverage in a future edition. Thank you! And with that, on with the show. How politicians get public opinion wrong I have written before about the benefits that come from widespread availability of high-quality political polling. We need more polls and more good coverage of polls. However, what I’ve not dug into before is the research into how accurately politicians estimate public opinion on issues. Thankfully we have academic research to tell us. First, the bad news: We present results from a study of 866 politicians in four countries.1 Politicians were asked to estimate the percentage of public support for various policy proposals. Comparing more than 10,000 estimations with actual levels of public support, we conclude that politicians are quite inaccurate estimators of people’s preferences. They make large errors and even regularly misperceive what a majority of the voters wants. Politicians are hardly better at estimating public preferences than ordinary citizens. Walgrave, S., Jansen, A., Sevenans, J., Soontjens, K., Pilet, J.B., Brack, N., Varone, F., Helfer, L., Vliegenthart, R., van der Meer, T., Breunig, C., Bailer, S., Sheffer, L. & Loewen, P.J. (2023a), “Inaccurate Politicians: Elected Representatives’ Estimations of Public Opinion in Four Countries”, The Journal of Politics, 85(1): 209-222. The bad news is not quite as bad as that makes it sound because, when asked whether the majority of public opinion was for or against various policies, politicians picked the wrong option ‘only’ 29% of the time. However, this included getting it wrong even when public opinion is far from evenly split on an issue: They do not only get it wrong when the public is divided and hard to read (e.g., when there is a 51%:49% distribution). Seventy percent of the misplacements occur for policies with a relatively clear distribution of at least 60% (dis)agreeing citizens. Moreover, the public scored only slightly worse than politicians, picking the wrong option 2.7 out of 8 times on average, compared with 2.3 times for politicians. Turning to the other measure of accuracy (not which side is in the lead but what the percentage support is for each side), politicians on average were 18 percentage points out in their guesses. Again, this was only slightly better than the public, whose error came in at 21 percentage points.2 Further research, using the same mix of countries, gives a little more comfort about how (in)accurate perceptions are: We show that politicians have a better understanding of public opinion when they think the issue matters to voters. Further, when an issue is personally important to politicians they more accurately estimate their party supporters’ opinions. The results confirm that politicians hold more accurate perceptions of voters’ preferences when they think it is important to do so but not necessarily when the issues actually are important to voters. Butler, C., Walgrave, S., Soontjens, K. & Loewen, P.J. (2024), “Politicians are better at estimating public opinion when they think it is more salient”, Party Politics: 1–13. Even so, it’s not a good picture. The remedy for this? Politicians should spend more time reading the polls. So forward this newsletter to someone you know… Share For a more general argument against banning polls, see my 2024 piece. Is “Let Bartlet Be Bartlet” good advice or not? The latest episode of my Political Fictions podcast heads across the Atlantic for a dip into one of the political TV classics: Mark and Cory talk about a giant of American political drama for the first time this week, as they tackle The West Wing. They talk about Let Bartlet Be Bartlet, the nineteenth episode of series one. In it, Mark wonders if The West Wing is actually the epitome of the “Boris Johnson school of politics”, Cory outmanoeuvres Mark into confirming we will record a Christmas Special about Love, Actually and they debate whether the central message of this episode has been misunderstood. Cory’s email newsletter is Paperback Rioter and Mark has a family of email newsletters. Subscribe to our newsletter for some additional bonus content and to get alerted whenever a new episode comes out. Our theme tune is “Monkeys Spinning Monkeys” by Kevin MacLeod/incompetech.com and licensed under the Creative Commons: By Attribution 4.0 License. You can also listen to our episode on Apple Podcasts, Spotify, the web or YouTube. Elsewhere from me… [ A Lord's Eye View How to fix the problem of money in our politics Welcome to my latest update on work in the House of Lords. This time I am taking a look at how our political system is regulated, and the protections we need to keep democracy safe from becoming simply a contest to see who has the biggest bank account… Read more 5 days ago · 3 likes · 2 comments · Mark Pack ](https://lordseyeview.substack.com/p/how-to-fix-the-problem-of-money-in?utm_source=substack&utm_campaign=post_embed&utm_medium=web&embedding_publication_id=1269283) If you spot a factual error… Borrowing an idea from Stuart Ritchie and others, if you spot a factual error in an edition of this newsletter, I will give you a free 12-month subscription to the paid-for version (or an extra 12 months on your existing one). Factual errors qualify, but grammatical errors or disagreements over interpretation do not, and my decision is final. Messages about both of those are always welcome, though. Voting intention and leadership ratings Here are the latest voting intention polls from different pollsters. It is all pretty static at the moment, with a small and consistent Labour lead in nearly all the polls. The table is also online here, along with explanations about what is included. It is updated regularly throughout the week as new polls are released. Next are the seat projections from MRPs, also sorted by fieldwork dates, listing those which are based on dedicated fieldwork (rather than models based on averages of other polls). Because such MRPs are published infrequently, some of the entries below are quite old. Finally, here is a summary of leadership ratings, with a graph from PollCheck: Detailed numbers from the latest polls are online here, and both that and the graph are updated regularly throughout the week as new data comes out. For historical figures on both voting intention and leader approval stretching back to the 1930s, including Parliamentary by-election polls, see PollBase. Catch up on the previous two editions [ ](https://theweekinpolls.substack.com/p/a-crisis-point-for-political-polling) [ A crisis point for political polling Sep 13 ](https://theweekinpolls.substack.com/p/a-crisis-point-for-political-polling) [ Read full story ](https://theweekinpolls.substack.com/p/a-crisis-point-for-political-polling) [ ](https://theweekinpolls.substack.com/p/extra-questions-about-the-polls-in) [ Extra questions about the polls in Reform’s funding scandal Sep 6 ](https://theweekinpolls.substack.com/p/extra-questions-about-the-polls-in) [ Read full story ](https://theweekinpolls.substack.com/p/extra-questions-about-the-polls-in) My privacy policy and other legal information are available here. Links to purchase books or other items are usually affiliate links which pay a commission for each sale. Quotes from social media messages are occasionally lightly edited for punctuation and clarity. If you are subscribed to other email lists of mine, please note that unsubscribing from this one will not automatically remove you from the others. If you wish to be removed from all my lists, simply reply to this email to let me know. A quintet of Lib Dem polling analyses, and 9 other polling insights you shouldn’t miss The following ten findings from the most recent polls and analyses are only for subscribers who pay for the full edition, but you can sign up for a free trial to read them straight away. Ahead of the start of Liberal Democrat conference, we have a trio of organisations and a pair of professors with pieces out about Ed Davey’s party:
TikTok added $12 billion to California businesses last year, report says
After being nearly banned in the U.S. over privacy concerns and launching a new U.S. joint venture, TikTok touts its contributions to California's economy.
Motorola Signature 27 confirmed to support GrapheneOS
It’s confirmed: The mysterious Motorola phone getting support for the privacy-focused GrapheneOS will be the Motorola Signature 27 that was...
How a controversial camera system is monitoring mental health patients
The Lampard Inquiry started back in September 2024 and I remember going to the first hearing in Chelmsford. Subscribe The bereaved families made placards of their loved ones, they stood outside in silence and then laid flowers to mark the moment. Now, two years on, in a process meant to last another two years, there’s been a development. Last week, we were told the chair, Baroness Lampard, pictured below, could be looking at making interim recommendations. Throughout the process, she has remarked that although this inquiry is looking at almost 2,000 people who were under the care of Essex mental health services from 2000-2023 when they died, the findings could have national implications for other trusts. ‘Records 24 hours a day in patient’s bedroom’ So why has this happened? One system that the inquiry is going to take a closer look at is a controversial monitoring system called Oxevision. It monitors some vital signs of patients remotely by using a camera placed in a room. It’s used by 40% of NHS mental health trusts. But campaigners, particularly the group Stop Oxevision, have asked for this technology to be removed from mental health wards as soon as possible. I spoke to a member, Hat Porter, today and they described to me what they thought this technology did and explained their concerns: “It records 24 hours a day and it’s located in a patient’s bedroom, which is obviously somewhere you’d usually expect to be a private place. “Our concerns are that the use of the technology has been has been kind of implemented as a substitute for proper in-person support, that it’s kind of over relied on and that there’s a lot of misunderstandings and that the presence of a camera, which has often been used without people’s consent, sometimes without even their knowledge, that that has a really big impact on privacy, dignity and human rights.” ‘Not sufficient’ I put it to them that the company behind Oxevision would dispute their claims about consent and in videos I’ve seen online from NHS trusts, they make it clear that the technology is complementary to trained staff and not a replacement. [ ](https://channel4news.substack.com/p/the-nottingham-inquiry-what-lessons) [ How the Nottingham inquiry shines a spotlight on other key mental health care failings ](https://channel4news.substack.com/p/the-nottingham-inquiry-what-lessons) Victoria Macdonald · Feb 12 [ Read full story ](https://channel4news.substack.com/p/the-nottingham-inquiry-what-lessons) A team of lawyers has been working on the inquiry and with bereaved family members who have concerns about this technology. I spoke to solicitor Priya Singh, from Hodge Jones & Allen, who made the point that questions usually asked by nurses would be missing from using devices like this. “It’s not sufficient to say, oh, the patient is moving around. Somebody must go in and say, are you okay? Are you distressed? Do you want help? Is there anything I can do? Share Channel 4 News “How are you spending your time? So I think a lot of our families cannot see the function of it when ultimately the patient should only really be observed when they’ve been prescribed to be observed, they can be observed more, but that more should really be happening face to face.” The Chair will hear evidence over the next two weeks and then a decision made after that, which could have national impact if she does decide this technology should be investigated or even removed. The Department of Health and Social Care said: “The Government is committed to ensuring that lessons are learned from the Lampard Inquiry to improve patient safety. “We are confident that the Inquiry will play an important role in identifying wider learnings for the health system following the tragic events in Essex and will contribute to improvements in patient safety.” We approached LIO Health, which runs Oxevision, for comment. Subscribe Share Channel 4 News Leave a comment
Data privacy lawsuit, subsidies for childcare staff: CT politics news
Plus: Schools get funding toward special ed and addressing attendance, while CT outpaces rest of New England in second quarter GDP growth.
iOS 27 adds scam-prevention feature to iPhone, here’s how to enable it
iOS 27 adds ‘Impersonation Risk Detection’ to help protect against scams, but it’s off by default. Here’s how to enable it.
Bruno Kramm, German Goth Musician Who Moonlighted in Politics, Dies at 58
When he wasn’t playing with the groundbreaking dark-wave band Das Ich, he was a prominent figure in his country’s fight for online free speech and digital privacy rights.
Medical Records Firm Uses AI Tool to Expose Flaws that Threaten Patient Privacy
Epic’s engineers deployed an Anthropic tool that exposed security risks that could allow undetected access to millions of patient records.
Byeon Woo-seok's agency warns of legal action over stalking and privacy invasions
Varo Entertainment said it may pursue legal action over invasions of Byeon Woo-seok’s privacy, including visits to staff members’ homes.
Thomas Massie introduces bipartisan "Flock-Off Act"
The cameras have faced scrutiny around the country over privacy concerns.
Data or privacy? Businesses can have both, MIT Sloan research finds
Data regulation doesn’t necessarily cause economic harm. Markets — and consumers — can still derive economic benefits from data collection when it’s tempered by reasonable privacy guardrails.
Spirit, Google ensure passenger privacy will be protected in bankruptcy sale of airline’s business data
A court-appointed ombudsman has concluded that the proposed $10 million sale of Spirit Airlines business data to Google can proceed since privacy concerns have been addressed.
How Silicon Valley used Main Street’s outrage against California privacy law
New changes to the California Internet Privacy Act promise to stop abusive wiretapping suits. They also quietly shield Big Tech from lawsuits.
Massachusetts can protect data privacy without hurting small businesses
As lawmakers debate the Massachusetts Data Privacy Act, they should be careful not to adopt an approach that unintentionally makes it harder and more expensive for local businesses to compete, grow, and innovate online.
Apple explains new Safari ad tracking privacy restrictions
Apple's latest privacy crackdown is rattling the online ad industry. And it isn't backing down.
LABJ Stock Index: October 12
AI Tools and Your Privacy: What You Need to Know Easy-to-use artificial intelligence tools may soon change our work and school lives – but they come with
Pa. Republican lawmakers say proposed Department of Health regulations pose privacy concerns
Pennsylvania’s Department of Health is facing widespread pushback from Republican lawmakers who say the agency’s plan for how it would respond to future infectious disease outbreaks would give health officials
Netherlands considers Meta glasses ban as retailers pause sales
A large eyewear chain is pausing sales of Meta's AI glasses over privacy concerns.
Californians surprised by $68 payments from Sutter Health settlement. Do you qualify?
Surprise payments of $68.81 hit some Californians’ accounts this week. Distribution is underway in a class action settlement that Sutter Health agreed to pay over alleged data privacy issues.…
Laurel police charge man with hiding camera in business bathroom
The man was charged with two counts of violation of privacy, felony charges, following his arrest.
Hilary Swank reveals how she kept her pregnancy at 52 a secret
Hilary Swank says it wasn’t that difficult to keep her third pregnancy a secret thanks to people in her life being so ‘respectful of my privacy.’
Meta's Muse AI assistant raises major cybersecurity and privacy concerns
Meta's Muse AI assistant is helping users save money on subscriptions, but it requires access to personal bank accounts and credit cards. Liz Peek warns of potential cybersecurity risks and the threat of rogue agents.
How to Run a Chatbot on Your Own Computer
Installing a large language model on your personal computer gives you a handy digital assistant that won’t compromise your data privacy.
AI-powered home monitoring tracks older adults’ health while protecting privacy
Older people could be monitored safely in their own homes without the need for intrusive cameras or wearable devices thanks to new research by Nottingham Trent University (NTU).
Samsung's New Smart Glasses Arrive at FCC for Approval
Smart glasses are certainly having their moment, both good and bad. I think it’s obvious that the world has seen the benefits of wearing a pair, but there is also that creepy, privacy nightmare side that has given us the ick. Still, Samsung and Google and their design partners will not be deterred from launching...
North Bay firms urge Newsom to sign website privacy lawsuit reform bill
Contractors in Sonoma, Marin and Solano counties are among thousands of California small businesses who say website privacy lawsuits are costing them dearly as CIPA litigation reform bill SB 690 awaits Governor Newsom’s action.
Flock Safety cameras face bipartisan scrutiny over privacy and misuse
The issue drew renewed attention after the arrest of a Kentucky police officer accused of misusing the cameras to track his ex-girlfriend more than 2,000 times
MEDIMPACT DATA BREACH: Edelson Lechtzin LLP Launches Investigation Into Exposure of Social Security Numbers and Health Information
/PRNewswire/ -- Edelson Lechtzin LLP, a national class action law firm, is investigating data privacy claims arising from the MedImpact Healthcare Systems, Inc....
Protect your business data with a $40 VPN during this Flash Sale
A little extra privacy for your workday.
Commentary: The tech threat to women’s privacy
In late August, Texas and Florida became the latest states to limit the use of Flock cameras, an artificial intelligence-powered network of automated traffic surveillance devices, in response to growing
Healthcare Privacy Leaders Look to AI to Improve Monitoring and Data Breach Investigations
At a recent symposium on privacy, experts discussed how AI supports a faster and oftentimes more insightful approach to data security, while identifying which privacy risks healthcare organizations must monitor.
What Does Your Office Say About Your Business? by Jennifer Kraner
What does your space say about you and your business? More importantly, does it give you the best possible first impression? The minute a client, customer or patient walks through your door, they’re forming an opinion about your business – sometimes consciously, sometimes without even realizing it. Your space is communicating something about you, whether you intend it to or not. At Big Sky Design, we work with all kinds of commercial businesses, including many medical practices, law firms and other corporate offices, and I’ve seen first hand how much thoughtful design can influence that first impression. For businesses in medical, legal, and financial fields, three things are particularly important: trust, privacy and professionalism. Your space should communicate all three while also reflecting who you are as a business. That can be challenging, especially in a new construction project. Often, so much of the budget goes toward the actual construction that things like lighting, comfortable seating, artwork and finishing touches get pushed to the side. But those are often the elements that make a space feel complete – and memorable. Think about your waiting room. Is it comfortable? Is the lighting welcoming? Does the layout make sense? When someone walks through the door, do they immediately know where to go and whom to speak with? In a medical office, there’s another important consideration: privacy. Reception areas can become surprisingly noisy places, with phone calls, conversations between staff and patients, and people discussing personal information. Hard surfaces throughout a space allow sound to bounce around, making it difficult to maintain privacy. We recently worked with an eye doctor's office that had exactly this problem. The reception desk had a large opening, and staff were making and taking phone calls right next to patients who were waiting. We designed an acoustic treatment that acted as a divider between the staff and waiting areas. It absorbed sound, but it also became a branded design element. It was a visual reminder to everyone in the space to be mindful of their voices and what others might be able to hear. Those kinds of thoughtful details can make a tremendous difference. And good commercial design doesn't have to mean making your space flashy. Sometimes it’s as simple as a calming color palette, beautiful artwork, plants, carefully selected lighting or comfortable upholstered furniture. In a medical setting, those touches can help soften what might otherwise feel clinical and reduce anxiety for patients who are already nervous about an appointment. I’ve been in waiting rooms where everyone feels packed together, and you can hear every conversation – even what’s happening in the restroom next door. That’s not the experience you want to create. Your office should also feel like your business. Are you telling people that you’re clean and modern? Sophisticated and unique? Warm and welcoming? Or, unintentionally, are you telling them that your business is outdated? You don’t necessarily need a complete renovation to change that message. Fresh paint, updated lighting, new artwork, better seating or a few branded design elements can make a space feel current and intentional. At Big Sky Design, we’ve worked with radiology, dermatology, and dental practices, among many others. Every practice is different, but the goal is always the same: creating a space that reflects the business behind it and gives every person who walks through the door a positive first impression. Because your office is part of your brand. Make sure it’s telling the story you want people to hear. Read more at bigskydesignonline.com.
REM Hotel Launch Might Change The Case For Investing In Melco Resorts And Entertainment Stock
Melco Resorts & Entertainment recently saw analysts reduce its fair value estimates after reassessing debt levels, margin assumptions and the outlook for Macau gaming revenue. The launch of REM, a privacy-focused luxury hotel brand at City of Dreams Macau, signals a push to reshape how higher-end guests experience the resort. We will now look at how Melco Resorts & Entertainment's investment narrative could be influenced by the REM hotel launch in Macau. Compare how Melco Resorts &...
Apple is planning tougher Mac privacy controls for AI agents
Apple plans new macOS controls requiring more explicit user action before apps can access emails, messages, browsing history, and personal files.
Dixon-based small business takes on predatory litigant claiming privacy violations
Boomers love AI images of their grandkids; millennial parents hate it
Some grandparents think AI images of their grandkids are adorable. Millennial parents worry about privacy, consent, and where the photos may end up.
Vargas: Privacy laws shouldn’t hurt local businesses
I hope lawmakers remember that consumer privacy and small-business success are not competing goals.
Viewpoint: Unlocking Europe’s wildfire data
Europe is already investing in the science, technology and infrastructure needed to understand, prevent and fight wildfires. Copernicus provides satellite-based Earth observation and environmental information, while the European Forest Fire Information System provides information on fire danger and forest fires across Europe. Weather and climate systems add forecasts of heat, drought, wind and humidity; historical fire databases show where fires have occurred; and researchers generate increasingly detailed knowledge about fuels, fire behaviour, forecasting, modelling and risk management. Meanwhile, new European research projects are adding digital twins and other tools to this growing ecosystem.However, these data do not necessarily sit together, nor are they necessarily described, structured or governed in ways that allow them to be used together. Much of the information is public, but some is commercially held. Some is sensitive. Some is subject to legal, security or operational restrictions. Even when data can be legally accessed, different systems may use different formats, terminology and rules.Europe therefore faces an unusual paradox: we have vast amounts of relevant information to respond to the wildfire challenge, but not the means to bring it together. For example, a wildfire researcher or emergency service might need to ask whether a particular combination of vegetation, drought, wind and topography has historically been associated with rapid fire spread. The relevant information may exist in several institutions, using different systems and subject to different conditions of access.The challenge is to conduct an authorised analysis that interacts with these sources, combines the results and respects the rules imposed by each data custodian.An important part of the answer can be found in the Fair principles, the idea that data should be findable, accessible, interoperable and reusable. Developed more than a decade ago, these principles have become a central reference point for modern data stewardship, making it easier for people and machines to find data, understand what it means and determine whether it can be reused.Readability by machines is essential, since AI systems will be key to meeting the data challenge. Bring analysis to the dataThe proposition is not to give an AI system unrestricted access to sensitive databases. Quite the opposite. The goal is to make it possible for approved algorithms to go to the data, rather than requiring sensitive data or large datasets to be copied to wherever the analysis happens.Imagine an analysis asking a series of questions of different data stations. At one station it might examine weather and climate data; at another, historical fire records; at another, experimental measurements of fire behaviour. The algorithm does not need to download everything. It can operate within the environment permitted by each data custodian and return only the results that the rules allow to leave.This is sometimes described as data visiting, and related approaches already exist in areas such as federated analysis and federated learning.Sensitive data should therefore not be treated as a free-for-all for machines. This requires appropriate governance at multiple levels. Access needs to be authenticated and authorised. The purpose of an analysis should be defined. The code or model being run should be controlled. Data custodians should be able to specify what can be queried and what results can leave their environment. Activities should be auditable and human oversight should remain where the consequences require it.In other words, the objective is not to trust AI with the data. It is to design systems in which AI never has more access than it needs.As open as possible, as closed as necessaryFair data should also not be confused with open data. Some wildfire data should be openly available. Other information may legitimately need to remain restricted because it concerns critical infrastructure, security, commercial interests, privacy or operational capabilities. The principle should be: as open as possible, as closed as necessary.The important point is that restricted data should not automatically become unusable data. If machines can discover what information exists, understand its meaning, establish where it came from and determine the conditions under which it can be used, authorised analyses can potentially be carried out without the underlying data ever leaving the environment in which it is protected.Restricted data can still be Fair and machine-actionable.This is also an important question of data sovereignty. European institutions should not have to surrender control of their data to a handful of technology platforms in order to benefit from AI. Nor does Europe need to start again by building one giant repository for every piece of wildfire information. The better approach is to connect what already exists.This is the principle behind emerging approaches such as Tryangle, developed through the Leiden Initiative for Fair and Equitable Science. Rather than creating another centralised data warehouse, the approach seeks to provide an interoperable layer through which approved algorithms can visit distributed data sources while respecting the rules of their custodians.In this way, a data station can remain where it is. Its custodians can retain control. Existing databases and applications do not have to be abandoned. What changes is their ability to communicate with other systems through common, machine-readable descriptions, access rules and interoperability mechanisms.But approaches like this need data that meets the Fair principles. Only then can an interoperable ecosystem safely begin to turn fragmented information into collective intelligence.Data infrastructure is wildfire infrastructureThe implications of this approach are entirely practical. Firefighters could gain better intelligence about local and evolving risks. Land managers could test prevention strategies using more comprehensive information about fuels, weather and past fires. Researchers could compare evidence across ecosystems without repeatedly moving huge datasets between institutions. Smaller regions and resource-constrained teams could access analytical capabilities without having to build large data infrastructures themselves.Europe is already investing heavily in satellites, databases, research programmes, forecasting systems and scientific expertise. The question is whether we will connect those investments well enough to turn them into actionable intelligence.That requires policymakers and funders to treat data infrastructure as seriously as physical infrastructure. Data generated or supported through European public funding should be Fair, verifiable and machine actionable by design, wherever legally and ethically possible.Related articlesData Corner: Europe’s burning need for wildfire mitigation researchClimate monitoring must remain a global enterprise, experts sayIn practice, that means funding not only the production of data, but also the infrastructure that makes data usable across systems: metadata, provenance, interoperability, access mechanisms and governance. Where data must remain restricted, we should ensure that it can still be securely discovered, verified and used for authorised analysis.Initiatives such as the European Open Science Cloud offer an existing framework through which these principles can be put into practice. What is needed now is to accelerate implementation and make them a standard part of how Europe funds and builds research and innovation systems.We do not need another generation of disconnected databases. The data is already there. The opportunity is to make it work together, securely, responsibly and quickly enough to help prevent the next fire, rather than simply document the last one.Jean-Claude Burgelman is professor emeritus at the Free University of Brussels (VUB) and editor-in-chief at Frontiers Policy Lab. For more than 20 years he held leading roles in research and innovation policy at the European Commission.
New research finds privacy protections preserve most social science findings amid growing census data debate
In the largest study of its kind, researchers from MIT Sloan School of Management and Carnegie Mellon University found that roughly 91% of published...
The app comes amid growing scrutiny of Meta’s smart glasses over privacy concerns
Worried Meta AI glasses may be recording you? Polish developer’s app can spot them
Xiaomi 18 Pro series goes official with ‘privacy screen,’ 8,500 mAh battery, and Snapdragon 8 Elite Extreme Gen 6
Xiaomi has just launched its new Xiaomi 18 Pro and Xiaomi 18 Pro Max in China with flagship specs, massive...
Flock is facing a surveillance backlash. Meanwhile, its drone business is booming
As cities push back against its license plate readers, the $8.4 billion surveillance company is betting big on police drones, raising fresh questions about privacy and oversight.
Nvidia Wants to Turn Your Idle PCs Into a Personal Home Data Center With 'PAIR'
Nvidia's PAIR links your unused laptops, desktops, and Macs together to run agentic AI locally without subscription fees or cloud privacy risks.
Luminis Health Working to Restore Systems After Cyberattack
Luminis Health in Maryland is investigating a cyberattack that has taken certain systems offline. Data breaches have been announced by Texas Orthopedic Luminis Health in Maryland is investigating a cyberattack that has taken certain systems offline. Data breaches have been announced by Texas Orthopedic surgeon Jeffrey David Reuben, M.D, Well Child in Tennessee, and Horizon Eye Care Laser & Eye Surgery Center in New Jersey.
Meta ordered to pay New Mexico $25 billion over Cambridge Analytica breach
A judge has ordered Meta to pay New Mexico $25 billion after a jury found the company liable for deceiving users about privacy and content moderation on Facebook.
Discord re-launches age verification following backlash over privacy concerns
Platform adds alternative methods that do not require video selfies or ID to verify age
Guidelines needed as AI embraced by mental health practices
Artificial intelligence (AI) tools are overwhelmingly being used in mental health practices to support administrative tasks, but University of Queensland researchers have found they potentially lack privacy, ...
Democrats Demand Trump Administration Halt Collection of Patients' ER Records
Senate and House Democrats say the Trump administration’s plan to collect patients’ medical data violates privacy and will discourage people from seeking medical care.
👀 Vozinha on his fame: I prefer my old life
Goalkeeper Vozinha broke his silence to speak about the strong impact popularity has had on his daily life following his standout performance at the World Cup.No privacy in everyday lifeThe goalkeeper...
Abliteration.ai is making a business out of removing AI guardrails
Abliteration.AI is making powerful AI models without guardrails easier to access, arguing that giving defenders the same tools as bad actors could ultimately improve cybersecurity.
How Data Lawsuit Settlement Will Impact CVS Health Stock Investors
CVS Health recently agreed to a US$20.5 million settlement over allegations that its website shared personal and protected health information with ad tech firm Criteo without user consent, resolving a data tracking dispute that had raised privacy and compliance questions. The legal resolution lands at the same time CVS Health is working with improved full year guidance, stronger cash generation and better Aetna medical benefit ratios. Together, these factors sharpen attention on how...
AI may soon allow humans to talk with animals — but some say it could violate the animals' right to privacy
Amazon makes Alexa+ free on compatible Fire TVs
Amazon's Alexa+ rolls out free to Fire TV devices across the U.S., but hands-free microphones and stored voice data raise key privacy questions.
San Antonio VA hospital report shows privacy and safety violations
Department of Veterans Affairs Office of the Inspector General issued 13 recommendations for Audie Murphy based on its findings.
Everything is spying on you and there’s no opting out
A new wave of AI-enhanced consumer creep-tech disregards the privacy of everyone but the wearer. The people have had enough.
Vocci's ring adds a new form factor to meeting note-taking
Vocci's lightweight ring costs $249, and might pose some privacy questions
Linking Northeast Ohio patient health records to ChatGPT brings promise and privacy concerns
Cleveland Clinic, University Hospitals, and MetroHealth patients can now link medical records to ChatGPT, raising hopes for better-informed care alongside concerns about over-reliance and data privacy.
Ray-Ban Meta smart glasses found recording audio without wearers' consent
The bug is fixed, but privacy concerns remain.
The hotel TV privacy mistake that can follow you home
Hotel TV privacy risks go beyond forgotten passwords when you sign into Netflix or other streaming apps on shared devices you don't control.
Hussein Syed, RWJ Barnabas Health, Chief Information Security Officer, Again Honored as A CISO To Know Nationwide
Hussein Syed, Chief Information Security Officer (CISO) for RWJBarnabas Health, was honored by Becker’s Hospital Review as one of just 55 Hospital and Health System CISOs and Chief Privacy Officers to Know, recognized for his work defending the organization against cyberattacks, a critical function for every hospital and health system. Mr. Syed has been included on Becker’s list several times.
WhatsApp introduces optional parental controls for teenagers
The social messaging app will let parents decide on privacy settings for their child's account.
Jodi's Journal: Weighing the price of data privacy
In a week of discussion over who’s watching us on the road, Jodi considers how data privacy questions could land next in the workplace.
Disconnect your LG television from the internet, now
If you've got an Apple TV set-top box, that's not enough to protect your privacy if you have an LG television. Unplug Ethernet and tell it to forget your Wi-Fi information.
Albany County Flock case fuels push for ALPR guardrails
An Albany County sheriff's investigator is accused of conducting more than 4,000 unauthorized Flock camera searches. The case is renewing debate over privacy, police oversight, and proposed statewide rules for license plate readers.
Xiaomi's 18 Pro Series Phones Have The Latest Snapdragon Chip And A Samsung-Like Privacy Screen
You'll have to wait a bit if you're outside China though.
Xiaomi 18 Pro and 18 Pro Max arrive with latest Snapdragon chips, privacy displays and more useful rear screens
They also get larger batteries and identical triple cameras. It only took a couple of hours for the first phones with Qualcomm’s new Snapdragon 8 Elite Gen...
Viral AI startup Instinct has raised $350 million at a $2.5 billion valuation
The startup is only a year old but it has already generated a massive amount of hype (and money) while also spurring privacy concerns.
Meta to Launch Camera-Free Smart Glasses Amid Mounting Privacy Concerns
Meta Platforms plans to release a camera-free pair of smart glasses this fall, according to people familiar with the matter, as it looks to expand its hardware lineup amid privacy concerns about cameras on its existing offerings. The new glasses model, internally code-named Luna, has six ...
LG Denies Accusations Of Smart TVs Continuously Recording Its Users
The company said that user privacy is a “fundamental principle” of its products.
August Monthly Review: ChatGPT In Epic
Death, taxes, another frontier lab healthcare launch inspiring truly insane LinkedIn takes. As much as I want to stay away, I repeatedly am the crewman unplugging his ears whenever we pass these sirens. So it’s not the first and probably not the last time we dial up the typewriter rather than tie ourselves to the mast. The full blow-by-blow timeline: Health API Guy is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. Subscribe The End of the Standalone PHR (Jan 8): ChatGPT Health arrives for consumers, at the time powered by b.well. I was bullish on the approach in that the best way for the PHR to finally solve distribution was to meet consumers were they already are (i.e. When Horizontal Meets Healthcare (Jan 9): OpenAI for Healthcare puts out the shingle for enterprises, with SharePoint ingestion standing in for the EHR integration the product actually needed. Another One: Anthropic’s Healthcare Debut (Jan 16): Claude's version, on HealthEx rails instead of b.well, with Agent Skills for FHIR development as the one true vertical-specific investment. ChatGPT for Clinicians: The Trap Sprung (Apr 24): OpenAI filled in the missing GTM middle with a free product for verified clinicians, effectively peeling the enterprise wrapper off ChatGPT for Healthcare and taking the PLG fight directly to OpenEvidence. OpenAI’s Second Attempt at Health (Jul 31): a relaunch of their patient specific app, now branded Health in ChatGPT, where the privacy partition came out, the connectors thinned, and b.well disappeared in favor of first-party FHIR work against a smaller network Beyond a Shingle So what was announced now? Today, we’re introducing a new electronic health record integration that brings authorized patient context from Epic into ChatGPT for Healthcare, along with the Healthcare Public Data plugin for direct, structured access to official healthcare datasets like PubMed, DailyMed, and CMS Coverage. Together, these capabilities bring ChatGPT closer to the systems and sources healthcare teams trust, while supporting the controls and compliance healthcare work requires. The core portfolio is unchanged from prior announcements we delineated and discussed (aside from the relaunch of patient-facing). Since trade publications still seem to be confusing them by using the wrong names: Enterprise sales motion: ChatGPT for Healthcare Protecting their core product / PLG: ChatGPT for Clinicians Consumer/patient-facing product: Health in ChatGPT So really, this is a feature release (specifically for ChatGPT for Healthcare when it comes to EHR integration). What’s cool about it, though, is that we are moving beyond just putting out a shingle. Everything in the January enterprise launch was horizontalizable: Horizontal tech companies thus generally start verticalization with their “putting out a shingle phase”. Telling the world you’re open for business as a horizontal tech company reliably attracts early inbound interest from buyers who are already trying to force-fit horizontal tools into domain-specific workflows and are eager for any signal that the vendor intends to support their use case more directly. Nothing was really vertical specific, which is exactly what you'd expect from the ultimate hypergrowth horizontal company dipping their toes into specific industries. But eventually you have to stop changing the sign on the door and start changing the product. Can you guess where the horizontal product was going to run out of road? This is the core dilemma writ large: verticalization requires differentiation, while scale economics of consumer and horizontal push toward unification. I’ve buried the lede so deep here it will be painful to some readers, but what should be shocking to no one is that my perspective is that EHR integration is the only path that meaningfully resolves this tension for ChatGPT for Healthcare. Integration with Microsoft Sharepoint is fine, but it is categorically insufficient for any product that hopes to influence clinical decision-making. SMART Money Well here we are, eight months later! Real vertical investment has begun, which surprised a few people. One friend in the industry messaged me: “Absolutely no way Epic gave ChatGPT API access.” Looking forensically at the announcements, the integration is notably read-only across appointment notes, laboratory results, medications, and specialist documentation. So while I’m not a betting man, I'd wager the house this is a SMART on FHIR launch: That sounds a lot like USCDI! The recommended path for the workflow they outline would be SMART on FHIR Their Health AI lead’s post is evocative of both standalone and EHR launch SMART, which another termed “ChartGPT” and “EHR Plugin” The implementation burden for SMART on FHIR is the lowest of the available integrative paths This is the team who literally did patient-facing SMART on FHIR with Epic last month Most importantly, if you’re a horizontal company, you generally still haven’t taken the full plunge and thus (overly) value reusability. SMART on FHIR is the logical compromise: healthcare-specific enough to matter, but standardized enough to reuse. Nobody Asked Judy Another friend asked “I thought they had to go to each health system, or did they go direct to Epic and now health systems opt in?” Given the trust paradigms in healthcare, this functionally cannot be Epic hoovering up all the data for OpenAI and shoving ChatGPT in their customers’ faces (or they would revolt). However, I do believe the aforementioned terrible coverage by TechCrunch and other outlets is probably responsible for that question, given the 325 million reference. When using FHIR as a business associate to an Epic customer, there is no EHR gatekeeping to speak of, as that isn’t how fhir.epic.com works: You register an app You pick your APIs You test against the sandbox APIs You list as “Ready for Production” Hospitals pick your app You test and go live with them Bluntly, nobody had to say yes or no in Verona (nor were they given the chance). Vendor Services (their next developer tier up that I doubt OpenAI is using quite yet in this initial release) certainly has contractual paperwork that some resent, but even there, the twin pressures of mounting antitrust and information blocking make outright gatekeeping increasingly fraught. My friend’s sentiment is, to me, representative of a broader industry neurosis, perhaps a sort of scar tissue of prior eras: people assume the gate is still there and never actually try the door. There are certainly other ways Epic (and any EHR) can put its thumb on the scale, but they are not so dumb as to stand in front of a federally mandated API and play bouncer at this exact moment in time. So I think they can and probably should go deeper, as this release is at best parity and at worst behind vertical-specific competition. OpenEvidence did a basic SMART launch with Sutter Health in February, allowing for more convenient evidence search by providers. They then add patient-context (the equivalent SMART on FHIR flow to what we see here) when Cedars-Sinai went enterprise-wide in May. UpToDate has four distinct applications across deeper workflows like patient engagement listed in Epic Showroom and announced a partnership with Epic to power Art at UGM Abridge and other ambient scribes have invested deeply into the deepest bidirectional clinical copilot workflow with integrations well beyond SMART on FHIR. In that light, the “Who is OpenAI primarily targeting here?” is clear. This release brings them into striking distance of OpenEvidence, but not the others quite yet. They are the only one of the three you can reach without building something truly Epic-specific. When will they go further? Competition is a great motivator to overcome the horizontal demons and start building things that can’t be reused: not across industries, not across EHRs, maybe not past the customer you built them for. That’s the price of actually verticalizing. The question is if and when OpenAI will be willing to pay it. Month in Review Here is the monthly review. As a reminder, this is a regular round-up of the month’s posts and other content to surface things you may have missed across regulation, litigation, interoperability, and beyond. AI assistance is used in these bullet summaries so I can focus on articles. Articles Published: None this month Video Content: The Information Exchange: Standards-based Thruple Edition (Aug 14): Back to school for us too, with Brad reporting in from the CMS Health Tech Ecosystem’s one year anniversary in DC. We get into the January CMS-0057 deadline, the fall rulemaking reading list, and why enrollment still keeps most apps off FHIR. The Information Exchange: Epic Dúnadan Edition (Aug 25): A UGM roundup with Ryan Brickner joining for the first time to check our takes against what the building actually thinks. Rangers, Ergo sitting on top of EHI, and a down-market lineup that needs some cuts. Regulatory: Stacked Deck, Bad Hand (Aug 05): ONC’s website refresh took the entire HIT Policy Committee record with it, so I rebuilt the archive and went looking for the regulatory capture story everyone assumes is buried in there. Stacking the deck and winning the hand turn out to be very different things. The Sixth Generation of Patient Access (Aug 19): A quick catalog of the five generations of patient access we’ve layered on since HIPAA, and the two candidates now competing to be the sixth. One is planned. The other is the market routing around the plan entirely. Court cases: Three Cases Walk Into a Docket (Aug 06): Two surprise settlements cleared the board in a single week, and then Judge Maddox dropped ninety-four pages on Vyne v. Henry Schein. The sleeper is a DMCA holding that makes direct-to-database a considerably riskier business model. Epic v. Health Gorilla: Into the MDL (Aug 10): Nine class actions are headed to Miami, and the Panel signaled it wants to bring the case that spawned them along too. That would leave Epic arguing the requests were obviously fraudulent in one courtroom and unknowable in the other. Amazon v. Perplexity: Agents Are Legalized! (Aug 11): The Ninth Circuit vacated the injunction against Comet, holding that the user is the one accessing the servers rather than the company that built the agent. A real win for agentic access, and a much narrower one than the headline suggests. Veeva v. Epic: Come At Me, Bro (Aug 26): Epic’s response brief wants the dismissal affirmed and, unusually, wants the opinion published as precedent. Buried in it is Epic’s own description of what its non-competes actually prohibit, which current and former employees should read closely. EHRs: The Contract Epic Would Never Sign Today (Aug 04): A 1999 SEC exhibit catches Epic licensing nearly its entire product line, Tapestry included, to the company that became TriZetto. The marketing services menu attached to it is the part that will make you blink. Forecast from Verona (Aug 07): The Epic Almanac makes one argument six different ways: the AI is only as good as the networks behind it. Emmie headlines, Art’s context stack is the most ambitious part, and Penny finally gets an autonomous coding date on the calendar. Works With Epic MyChart (Aug 17): Epic’s first new Showroom category since the death of Workshop certifies hardware instead of software, badge on the box and all. Made for iPhone, but for blood pressure cuffs, and rough news for anyone selling the RPM stack sitting in between. UGM Hot Takes 2026 (Aug 20): Everyone else covered the AI announcements, so I went after Savvy deleting the payment gateway, Rangers as Boost with the timer removed, and a down-market lineup with too many entries. Plus the Health Grid tidbits I cannot help myself on. MyChart Central Grows Up (Aug 24): Device data and Emmie turn Epic’s identity hub into a full consumer platform, which is both a logical answer to ChatGPT and a bit of a mistake. It also happens to be the best scraping target Epic has ever shipped. Industry Analysis: The Wrong Yardstick (Aug 12): Vertical software keeps getting judged against Superhuman and Notion, which is the wrong bar entirely. Your user is comparing your product to a whiteboard and forty phone calls before lunch. Primitives vs. Abstractions (Aug 27): Developers want building blocks, systems of record prefer to hand out business logic, and both sides have a real case. There’s no test from the outside that separates the engineering reason from the competitive one, which is why this keeps ending up in court. Cross-industry Comparisons: The Two Kinds of Platform Power (Aug 18): Attention power and record power are different problems that keep getting handed the same regulatory toolkit. Congress’s latest swing at Big Tech shows both what’s possible and where it falls apart. The Dogs of (Platform) War (Aug 21): A CourtListener alert turned up a property management fight with healthcare’s exact shape and none of the Cures Act. Shell prospects, ghost accounts, a notetaker bot that came back to haunt someone, and a lawyer arguing both sides of the same theory in two states. Fractals All the Way Down (Aug 31): Yardi dominates property management right up until you zoom into one segment, where AppFolio owns it outright and Yardi doesn’t appear at all. Where you draw the line around a B2B software market is about to decide an awful lot of cases. Other News: If Judy Had the Courage (Aug 13): A short eulogy for the era when software was allowed to look insane: WinAMP, bold colors, and everything the grey chatbot era has taken from us. External Media: Portland Monthly Health Tech Meetup: Erin O’Brien channeled my own feelings - maybe it’s just because it’s August and beautiful, but the monthly edition of the PDX Health community meetup was a ripper. Make sure to reach out if interested to join for the next one. STAT’s Coverage of Epic This Month: Brittany Trang of STAT did a fantastic job of breaking the FTC investigation that’s been lurking, as well as UGM related coverage, so I had to give her her wish of a meme. Fall Conferences: I’m pumped to be kicking off my fall conference season in NYC at Nabla Accelerate next month, which Chrissy provided the link to apply for. Here’s the rest of my schedule in case you want to meet up: Commonwell (Redwood Shores, CA): Oct 13-14 Open@Epic (Madison, WI): Oct 21-22 eHealthExchange (Austin, TX): Oct 27 Sequoia Project (Austin, TX): Oct 28-29 HLTH (Vegas): Nov 15-18 RSNA (Chicago): Nov 29-Dec 3 Posts I Liked: HTI-6 Should Unbundle API Certification: Josh Mandel makes the case that HTI-6 should split (g)(10) into separate authorization and data certifications, so a PACS or a genomics platform can certify only the role it actually performs. Imaging is the urgent example, but the structure solves a much bigger problem. On implementing ePrior Auth with Epic: Scott Rossignol’s field notes from a live ePrior Auth build on Epic, including the two app registrations nobody warns you about and the CPT mapping problem waiting at the end. CMS-0057 implementations are going to be such a beast. Healthcare point solutions are starting to look a lot like streaming services: Spencer Dorn runs the cable-to-streaming arc against health IT and lands squarely on the bundling half of the cycle. Bundling can be good! It can also be bad! Life is nuanced. Health API Guy is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. Subscribe
Always on, always listening: New AI devices are pushing legal limits and could put users in jeopardy
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Privacy and Pilates – Inside Duchess Meghan's reported UK hideaway
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Xiaomi’s new 18 Pro phones improve on Samsung’s privacy display
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Shapiro, Kennedy have war of words following 2 measles-related deaths in Pennsylvania
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Read the Apple document explaining how new listening features still protect your privacy
Will you be using Audio Intelligence?
United Airlines Debuts Polaris Studio Business Class For Global Premium Travelers
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Meet the Fall 2026 Institute of Politics & Public Service Capitol Campus Fellows | McCourt School of Public Policy
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Teresa Giudice asks for privacy for daughter Milania Guidice
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Patients Warn That Mental Health Surveillance Could Undermine Care
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Zuckoff app can detect Meta smart glasses recording nearby
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Mark Zuckerberg says Meta will lead on smart glasses privacy despite ‘pervert glasses’ criticism
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Health questions? “Ask Away.” PC Health™ launches new “Built in Canada for Canadians” AI-powered health chat
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Taylor Swift, Travis Kelce new neighbors rail against privacy fence
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Look Upstream: AI, Federal Data, and the Politics of What Gets Counted
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Boomers love AI images of their grandkids; millennial parents hate it
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Emirates gives premium economy seats a new feature: privacy screens
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With a ‘Box-Bed,’ a Family in a Brooklyn Loft Found (Semi) Privacy
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Supreme Court Allows Expansive Federal Database for Voter Screening
Critics of a citizenship database built by the Trump administration have raised alarms about privacy and improper voter purges.
Lindsay Clancy mistrial: 7 postpartum mental health takeaways
From extra privacy restrictions to medication trial and error, the case offered a rare window into coping with mental illness.